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Old 29-04-08, 01:57 AM
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Knight~Ryder Knight~Ryder is offline
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Quote:
Originally Posted by shepg View Post
Hi Knight-ryder,

Do you or any of your family members have of have had migraines? The reason I ask is after learning so much about Migraine syndrome, so many of your sx I have read about. I had no idea that migraine could present itself in so many ways, after all it is a neurological condition. Can you get the book "Heal Your Headache" by Dr. David Buchholz? He is a leading "headache" specialist at Johns Hopkins in the US. I have been suffering from non-headache migraine symptoms for years now. if you can't get the book, I would be happy to get a copy and mail it to you. I think many docotrs are learning more and more about this syndrome, but still many doc's have no clue. After all your testing, you know that everything is "normal" and yet you feel far from it. I totally understand. I had the face vibrating, scalp felt bruised to the touch, constant fatigue, sleep problems, brain movement feeling even though my head isn't moving, confusion, difficulty keeping concentration, stumbling over words, bridge of my nose twitching, wooziness, upper lip tingling, neck aches, tingling all over my head, cold, cold hands feet (even right now, my fingers are frozen), flushing, eyes tearing, floaters, nausea and the list goes on and on....I had no idea this was migraine related!!
If anyone ever asked if I had migraines, I would say no, I rarely get headaches....now since my diagnosis, I am really looking back to years ago, and in fact I had had alot of neck issues, with after all the neck x-rays etc...there was no reason for this neck issue. Now I understand that it was just the way my migraine syndrome was presenting itself, and since has presented itself in many "strange" ways.
I asked around and my family does have a history of migraines....well, the family history puts me at risk for and now being diagnosed with the Migraine Syndrome.
I am no doc, but just thought its something to look into for yourself
I want to add that your over sensativity to sounds is also very indicitive of Migraine
Hope this helps.
let me know if you need this book.

Pam 3
Yes, my grandfather, sister, uncle, and mother. My uncle had it the worst, sometimes he couldnt even leave the house it hurt so bad. None of them have experienced what I am going through.

The more I look into this, the more I am confused, there seems to be endless ways to look at what I have, My symptoms are from a whole bunch of various illnesses. No wonder no one can help me out?

What I wrote here today I will take to my doctor, the thing is what do I say now? What do I say that I havent said before? Who do I see?
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