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BruceC
21-08-07, 07:33 PM
Hi Everyone,

I haven't posted in a long time, but have been battling this balance disorder for nearly 14 months. I've been to many doctors and a few physical therapists, and have been doing 2 different types of VRT exercises, none of which have really helped much. My primary symptoms are feeling unsteady on my feet, a little off balance, and this constant head pressure ( or as the doc says - chronic tension headache). I also feel that spaced-out feeling that people talk about, sort of like I'm not quite in touch with reality. Others have described it as almost feeling drunk all the time. And of course, the bouts of anxiety and depression we all feel when we don't get better.

One PT I went to who specializes in balance disorders, said that the head pressure is due to my body tensing my neck and head to keep it from moving too much, thus easing the off balance feelings. Since both the head pressure and neck problems occurred at the same exact time as I began to feel off balance over a year ago, I am still suspect that it might be my neck causing the problems. There is something called cervical vertigo, and there are varying degrees of it. I had an MRI of my neck done and they saw two slightly bulging discs that could be pressing on a nerve. However, the orthopedic dr said that would not be causing the head pressure. Not sure about that since I can press on trigger points in my neck and feel pain in my head and scalp.

Does anyone else have this constant pressure in their head? My head felt like it "cleared" maybe twice in the last year, and when it did, I felt like I got my equilibrium and balance back. The last point I want to make is that they have found a connection between a "forward head position" or craning of the head and neck, which can cause a proprioceptive problem. In other words, to keep your balance, the brain relies on signals from the eyes, inner ear, and body (up through the neck). If there is a problem in the spine, this signal may be getting short-circuited or distorted, and not be sufficient for the brain to interpret.

I look forward to hearing from anyone with a similar issue.

Thanks,
Bruce

Erica
22-08-07, 10:16 PM
its not unusual to suffer from headaches such as the ones you describe with a balance problem because tensing the neck to try and keep yourself balanced does cause these types of headache..before exploring the cervical vertigo route however, I would advise that you see your specialist and ask for full balance function tests, these will either confirm or rule out balance problems caused by inner ear disorders..you also need to rule out migraine associated vertigo which can give similiar symptoms..I would always err on the side of caution with regards to the neck in that I wouldnt recommend you have any type of cranial oesteopathy or manouvres performed on your neck until you are 100 per cent sure that your problems are not caused by a different condition.

steveb
23-08-07, 07:58 PM
Hi Bruce

Your situation sounds pretty much the same as mine and the time frame is similar (I have my one year anniversery of the major health hit on 5th Sept).

I too am off balance with constant pressure in my head. And I describe it as pressure not pain as it's not actually painful as such. Painkillers wont touch it either. Not because I need stronger ones, it just isn't pain so the painkiller doesn't affect it. My balance issues are also not of the typical 'spinning vertigo' type but I just feel like I'm swaying (because usually I actually am) and I don't feel stable on my feet. This is accompanied by nausea from mild to pretty severe but no vomiting. The head pressure is typically from the top of my head and down through the front of my face to my bottom teeth. When the pressure is a bit milder I can feel it focused over the bridge of my nose. I also get a neck that feels very stiff (although my range of motion isn't actually impaired). And the disassociated, foggy feelings too. And a whole bunch of anxiety, depression and, initially, panic attacks.

It was assumed to be Labyrinthitis at the start and so I ended up with an ENT doing VRT exercises and this didn't help much. In fact, despite my feeling the disequilibrium, some of the simpler eye focusing exercises actually made me feel better while doing them as it was quite relaxing. The exercises only made me more dizzy when I did a harder one and when it was done very quickly. Example: Exercise to hold a ball in your hands at arms length above your head. Then, keeping your eyes on the ball at all times, move the ball in a large circle so it's out to the right, then touches the floor and then to the left etc... 15 times clockwise then 15 times anticlockwise. To make myself dizzy I had to do a full rotation in less than 2 seconds and keep it going. I'd defy a tightrope walker or ballet dancer to be able to stand steady after a full routine of that. So, the VRT didn't helop much.

I got MRI'd and that ruled out anything really worrying.

After that I started looking at sinus issues and the cervicogenic dizziness condition (as you are). I saw a Cranial Osteopath for about 5 months and she worked on my neck a lot being sure that was what it was. Didn't help much. I also switched to a memory foam pillow and it helped my neck a lot but hasn't helped my illness much.

At this point I tried Homeopathy. That didn't help at all and I'm pretty skeptical about it all.

I was having problems getting my sinuses checked out as my ENT was pretty useless. It was around this time I started looking at TMJ disorder (problem with the temperomandibular jaw joint) nas this can cause exactly my sorts of problems. I have a dentist friend in Australia who suggested I see an Oral Maxillo Facial Surgeon as he said they're much more knowledgeable than ENTs on my sort of problem. So, I went to see my dentist to talk about TMJ disorder and he said it was very possible as I have quite a heavy overbite and my jaw closes too far. So, I got referred to a local Oral Maxillo Surgeon who he highly recommended. Mr Lansley, the surgeon, has been excellent in trying to help me. He thought that it was worth exploring the TMJ idea and he also got me a CT scan of my sinuses done to have a good check around. The CT showed a deviated septum but didn't appear to show any problems that would cause my symptoms. The CT also caught the top of my cervical spine and that seems fine too.

So I went back to my dentist who started some mild TMJ treatment. TMJ is notoriously hard to diagnose and so dentists start subtley with reversable treatment rather than wading in with surgical options. He sorted me with a polythene lower jaw splint which I wear at night to keep my jaw from closing too far. I've been using it for about six weeks now and I seem to be improving. He said not to expect too much from it as I need something a little more substantial to effect any major change but the fact that I seem to be improving is a good sign. Since using it I have had far less of the really bad days and have recovered quicker. I am currently waiting for a hard plastic upper jaw splint which should be more theraputic. If it IS TMJ then the long term says surgery of some sort but that's a way off.

But there is something else that happened recently which is something I'll be reporting back to Mr Lansley in October when I next see him. A few weeks back I woke on a Sunday morning feeling pretty bad with balnce problems and head pressure. I walked down to the town centre and felt quite unsafe, and majorly anxious, so walked home and flopped into my computer chair to surf the net a little. After about ten minutes I suddenly felt something weird in my nose. Very strange feeling and so I wandered off to the bathroom and looked in the mirror. There was a trickle of water coming out of my right nostril. Not snot, but water. Okay, apologies for getting graphic now, but I stuck my little finger up the nostril and it was soaking up there. And I pulled out a blob of white sludge. Again, not snot but sludge ( a later search on the net makes it sound like it was pus). BUt then the really amazing bit. In the space of maybe 60 seconds or so since sitting in the computer seat (and remember I was having a bad day and had given up on my walk maybe ten minutes earlier) I noticed that my feet felt solid and the head pressure was gone. I moved my head around a bit. Nothing. Felt normal. It was my first total 100% moment in a year and it had hit me the instant that crap came out of my nose. My immediate thought was to walk straight back down to town. So I did, and no imbalance, no head pressure and no anxiety. AT ALL. This lasted about an hour and then it slowly started to return. Had a good few days all in as it was quite some time before the symptoms had gotten to an annoying level.

Since then I've had similar incidents of a wet nose but not so dramatic. And I normally feel a bit better when it happens. My GP thought it interesting and the nEuro surgeon I saw the week after thought it was 'a bit weird' but didn't make much of it. But I did and I'll be very interested to see what Mr Lansley thinks. Seems to me that I have some sort of intermittant blockage that is constantly slightly clearing then reblocking (hence my cycles of good days/bad days which are practically clockwork). On that Sunday I got a chance heavy unblock and it temporarily cured me totally. Now I guess I need to find that blockage and figure out how to keep it unblocked.

But I think the TMJ thing maybe part of it too. So I'm keeping up with that.

That's the quick (honestly) version of my story. Hopefully reading that lot will give some food for thought. Like me, it doesn't sound so much like an inner ear problem, though don't take my word as a diagnosis as there is nothing in your symptom list that seems to definitely exclude that. Cervicogenic Dizziness could still be the problem though I'm not sure of your best route there as I never found much out. Not sure if you could have TMJ problems but it might be worth having a chat with a dentist. Bear in mind that I do not suffer jaw pain and that is not proof that it isn't my jaw. The TMJ is right next to the inner ear and can cause problems there. And it can also affect sinus drainage and so on (see how it could all fit together in my case). I'll try to post a pic of my jaw models so you can see how my jaw is a bit screwed up.

One thing I'd really suggest is seeing a counsellor or Psychiatric Nurse as they can often help with anxiety issues. I'm not suggesting it's the cause but it's definitely a symptom and anxiety management techniques (like Cognitative Behavior Therapy and Deep Relaxation CDs) can help this condition a fair bit. I kind of see it in the same way as a paracetamol/pain killer. It doesn't help the root cause but it does make it all the more manageable.

Well, that took a while to write. Hopefully there's something in there that will give you an idea of where to turn next. If you've any more questions, don't hesitate to ask.

Steve B

steveb
23-08-07, 08:08 PM
And here's the teeth pics. Fun huh? You can see how, in the second pic, my lower teeth completely dissapear behind my upper ones. That aint right in the ideal scheme of things...

http://img.photobucket.com/albums/v480/grasientus/teethies.jpg

BruceC
23-08-07, 08:58 PM
Hi Steve,

Wow, thanks for all the details! When you have something like this you become obsessed (at least I do) with finding a cure. I can't imagine living the rest of my life like this. Now I really believe we have the same thing based on what you said. I also don't "spin", but rather the constant off balance and equilibrium, and the feelings of being foggy and disassociated with reality.

I went through the whole TMJ thing about 3 months ago and was fitted for the hard splint. After wearing it for a few weeks I noticed it had calmed down my jaw (got rid of a lot of clicking, popping, and crunching), but did not give me my balance or equilibrium back, or make the head pressure go away. I think the head pressure is probably due to the tension in my neck from being off balance, kind of a tension headache. Like you, I don't have any pain either, just a feeling like a tight band around my head. However, let me tell you something about the splint. It will keep your teeth from touching, and keep your bite in a better position (I too have an extreme underbite), but won't keep you from clenching, or grinding side to side.

So, as a result I have started to try not wearing the splint, and instead, train myself to either keep my jaw dropped and mouth open while I sleep, or keep my tongue between my teeth. This take time, but a friend of mine who had severe tmj, did not get total relief until she taught herself to stop clenching at night. So if you clench, you bite your tongue, which wakes you up. The fact is that if you are a clencher, you have two options: 1) figure out what is bothering you psychologically and correct that, or 2) figure out a way to stop clenching. When people clench and grind, they also tense their neck and face muscles. Frequently I wake up with wrinkles in my forehead and face from clenching my face muscles too. If you hold this kind of tension in your neck and head for long periods of time while you sleep, it will affect the blood vessels and nerves that run through the jaw areas and neck. You'd be surprised what runs in the there. The trigeminal nerve, certain cranial nerves, and parasympathetic nerves. My TMJ specialist believes that irritation of all these nerves and blood vessels is causing my problems, creating a constant inflammation.

So here we are. The one caution I would give everyone is to avoid anti-anxiety meds or anti-depressants if at all possible. My first ENT put me on Valium to calm my vestibular system. This led to 9 months of benzo addiction, where I was taking as much as 2 mg of Xanax a day to keep from losing my mind. I am now 4 months benzo-free, but still struggling with bouts of anxiety followed by depression.

Tomorrow I see another audiologist who wants to run some more tests because he still thinks I have BPPV. Some of my earlier tests seemed to indicate that. So I continue to exlore all options.

The funny thing about your "breaktrough Sunday" is that I have had my head clear and my balance come back for a short period of time just twice in the last year. To me, it felt like my head pressure cleared, and as a result, my balance came back. However, I didn't have any discharge from my nose. But like you, I have a history of sinus congestion and my right sinus is clogged up pretty much all the time.

If that happens to you again, I would be curious to hear about it. Let's continue to post here if we have any success in fighting this terrible thing.

Thanks,
Bruce

MsM
24-08-07, 08:36 AM
From my experience there is nothing wrong with using benzos. Anxiety and tension and panic attacks often come with this dizziness problem and I have found that Ive managed somewhat well with taking benzos whilst the symptoms are strong. Temaze is good for a good nights sleep and doesnt have to be taken all the time. Neither does one have to take valium all the time I found. To my way of thinking its better than having to take antidepressants as you have to take them all the time and they have unwanted side effects. Taking a medication all the time is being addicted to it anyway:)
I had labyrinthitis when I was 19 years of age and it lasted a couple of days, it was so intense that there was no way of standing up. Im now 60 and for the last several years have the symtoms you all describe. It comes and goes with varying intensity and I was told that there is no real cure for it. This doesnt mean one has to slash ones wrists nevertheless:) Because you never know when it will disappear and because you dont know you cant assume it will be there always, right?
Its very debilitating and the best thing to do is not to move around too much when its at its worst in case you fall over and break your bones which would be worse. One shouldnt feel guilty about not being able to do anything at this time either. So I just think the best one can do is just to keep the stress levels down and wait it out with some kindly help from the benzos. I just dont understand why they are so much maligned when actually they are helpful.
I read information that Stemetil is the one to avoid as taking that often can cause Parkinsonism. That is another reason I have opted for benzos. They are tried and tested and do not have any side effects such as I just mentioned.

Thanks
MsM

BruceC
24-08-07, 02:22 PM
Hi MsM,

Thanks for your opinion on this. I agree to some extent that taking benzos short term (less than 1 week) may be ok to get one through the anxiety of a LABS recurrence. But for those of us who are dealing with dizziness and balance issues on a constant daily basis, getting addicted to benzos is very easy and can turn into a psychological nightmare. I know because I've been there. Anti-depressants have thier own share of issues and you're right, they have to be taken over long periods of time. So I would avoid those too unless absolutely necessary.

Lastly, if anyone reading this is on benzos and wants to stop, you MUST taper slowly and gradually over time under a doctor's supervision. Otherwise, there are health risks associated with cold turkey withdrawal which have been well documented.

Bruce

BruceC
24-08-07, 02:30 PM
Steve,

One question I have after reading your post again - did you ever consider trying a round of antibiotics to see if you may have a baterial infection in your sinuses after seeing that white pus come out?

Bruce

Liz Jenkins
24-08-07, 05:21 PM
Hi
I also have sinus and headaches as well as dizziness and no spinning attacks. I have had this since Feb this year. My neck also hurts quite a bit and I have had a week free of it after a cold that seemed to clear my head and sinuses. I'm waiting on ENT referal and have had blood tests for everything that I am waiting on. So I wouldn't rule out sinuses as causing your probs particulalry with the nasal discharge you report.
Just know your not alone with your symptoms. Hopefully we will all get an answer and a solution eventually.
Liz

steveb
24-08-07, 08:52 PM
<div class='quotetop'>QUOTE (BruceC @ Aug 24 2007, 03:30 PM) <{POST_SNAPBACK}> (http://index.php?act=findpost&pid=27009)</div><div class='quotetop'></div><div class='quotemain'>Steve,

One question I have after reading your post again - did you ever consider trying a round of antibiotics to see if you may have a baterial infection in your sinuses after seeing that white pus come out?

Bruce[/b]</div>

No, didn&#39;t do that. Earlier in my treatment I used nasal steroids (Nasonex) for a couple of months to no avail. No doc or specialist I&#39;ve seen so far has been particularly interested in the &#39;pus/water&#39; incident. I&#39;ll be taking it up with Mr Lansley on Oct 2nd. I will suggest the antibiotics to him and get an opinion.

As for benzos and ati depressants, my doctor and counsellor are keen for me to go on Citalopram using valium to get me through the first few weeks. I&#39;m not keen but see it as a method to finally get a conclusive answer as to whether this is &#39;all in my head&#39; as so often suggested. My dentist has asked me not to until we&#39;ve thoroughly explored the TMJ possibilities and I&#39;m really seeing them as a total last resort.

BruceC
24-08-07, 10:26 PM
Steve,

If you go on the meds, please take my advice with the tapering on the Valium. The A/D is much safer than the benzos, but as your doc may have told you, it may make you a bit jittery in the first few weeks because it&#39;s designed to pull you out of a depression. In my opinion, if you are feeling anxious and depressed, it&#39;s probably because you have a chronic illness that is not going away. I would suggest continuing your search as your dentist advises, and keep searching for answers.

Take care,
Bruce

Luckybob
26-08-07, 07:34 AM
Hello

I too have the constant head pressure, for me it is over the bridge of my nose and between my eyebrows and sometimes above my ears. I have to say when this all started it was just the dizziness in my head and with that came this strange feeling in my legs like a weakness feeling when I walked. Having been such an active person until this started in June I now cannot walk for more than about 10 mins without having to sit down.

The pressure feeling started a few weeks later, At first the Dr said it&#39;s an inner ear infection it will go away on its own, then when I kept going back they then said it&#39;s a sinus infection due to the pressure feeling, 3 lots of anti-biotics later and a CT scan I still have it worse than ever some days are good and others are bad. I am going to see an ENT on 14/9/07 but only because I went and begged my DR to refer me!

I have been mainly posting in other dizzy conditions as I am not sure what I have. So many of my symptoms are similar to lots of others on this site but they all have different conditions!

Wick
30-08-07, 10:46 AM
Hi, I also have the disequilibrium, off balance feeling with a pressure headache and also behind my nose and upper jawbone. When I feel better occasionally I also feel as the pressure has cleared.

What do we all have?

Wix

spacedoutjason
30-08-07, 12:54 PM
"I too am off balance with constant pressure in my head. And I describe it as pressure not pain as it&#39;s not actually painful as such. Painkillers wont touch it either. Not because I need stronger ones, it just isn&#39;t pain so the painkiller doesn&#39;t affect it. My balance issues are also not of the typical &#39;spinning vertigo&#39; type"

Snap the same with me but this usally comes on when my neck has cracked as i move it and then stays for days, its like a mild handovewr feeling and my eyes are sensitive to fast moving objects so im not driving and are thus not at work.

I also get dizzy and slighlty off balance if i turn around or look down at something

BruceC
30-08-07, 02:04 PM
Jason/Wix/Bob/Steve:

Sounds to me like we all suffer from the same thing, and I am starting to think it&#39;s not Labrynthitis. The folks who have true LABS seem to to suffer from frequent bouts of vertigo, and they may also have hearing problems according to the research I&#39;ve done. The vertigo is also quite severe. And lastly, most get over it in 4-6 weeks after the alleged virus that caused it has left their body.

I&#39;m convinced that I have either a form of positional vertogo, or something related to the head pressure or constant tension headache, like vestibular migraine. As Jason said, when my head pressure clears, which has only happened maybe twice in the last year, I feel like I&#39;m grounded again, in touch with reality, and my balance restored. But it didn&#39;t last for more than a few minutes on those two occassions.

So - I&#39;m having an Epley maneuver done today to see if that corrects the possible positional vertigo. I know someone who was diagnosed with BPPV, but only rarely had spinning vertigo. She walked around like we do - off balance and spaced out with that tension headache. She had the Epley done and felt great for about 3 weeks, then while just sitting at the table got a dizzy spell. She had the procedure done a second time and has been fine for months.

The reason I also suspect that tension and constant head pressure and headaches are the cause is that my symptoms went away when I was on anti-anxiety meds and anti-depressants last year. When I came off all that crap, the symptoms came back.

The last thing that comes into play here is a TMJ problem. Steve and I have been talking about this. We both clench and grind our teeth at night and the TM joint is right by the ear, which can cause inflammation. Also, there are a number of nerves and blood vessels that run through there, including our parasympathetic nerves, which is why some people believe we get the anxiety when we have this problem. Everything gets irritated in there, and false signals are sent to the brain about our situation, i.e. "fight/flight".

Anyway, I notice my symptoms get worse (more spacey) when I chew hard crunchy foods, and when I wake up in the morning I feel the worst. As the day goes on, I feel better. I wear a hard splint at night, but that doesn&#39;t stop me from clenching, it just protects my teeth and supposedly keeps my jaw in a "safe" place where is is damaged the least.

The TMJ problem may or may not be affecting my inner ear, but can certainly be restricting blood flow to the inner ear, which is very sensitive to these changes.

So I guess the question is - do we have stiff sore necks and constant tension headaches because we&#39;re off balance and the body is trying to keep the head from moving as someone stated earlier in this thread, OR is the head pressure actually a migraine or tension headache which is causing trouble for our vestibular system??????

In my case, the balance problems and head pressure occurred simultaneously, so I don&#39;t really know.

I will keep you posted on how my Epley goes today, and if I get any relief. If I do, it will be a true miracle!
Let&#39;s keep this thread going until we all find a cure. http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/biggrin.gif

Take care,
Bruce

clairjo
08-09-07, 08:23 AM
hi everyone, i too suffer from constant head pressure, i find that i get it in the back of my head and neck, mainly behind both of my ears. its a lot worse when i have a headache too.

Erica
09-09-07, 12:38 PM
ive had TMJ for years,..it was so bad that one of my back teeth was cracked..I wear a bite guard and certainly notice that I feel worse when I dont wear it..I get migraine and ear ache, feel worse with my dizzies etc..however I know Ive had labs, but think that TMJ can certainly make things worse

spacedoutjason
11-09-07, 02:10 PM
bruce how did you go with the Epley maneuver? my docter tested me and i was negative so im now on 30mg of amitriptyline a night,good for sleeping but the dizzyness is worse in the morning for about 3 hrs if i look round down turn around it gets worse

fuzzyhead
14-09-07, 12:11 AM
Hi Bruce, Hi everyone:)

I thought I&#39;d chime my two cents in here.

I too suffer (on and off) from these "headaches" and "headpressure" that OTC meds do not touch. They are horrible b/c they bring on a slew of other symptoms ie: disequilibrium, wooziness, nausea etc.

You mentioned you were on a AD medication and you had no head pressure? Can I ask which one you were on? Many AD&#39;s are a first line treatment for many MAVer&#39;s and have helped them manage this condition....interesting.

Tracy

BruceC
14-09-07, 03:32 PM
Hi Tracy,

I was on Lexapro (a/d), but was also on a high dose of Xanax at the same time, so I&#39;m not sure which one was helping the most. However, if I had to do it all over again, I would never have taken any of those meds. The doctor literally poisoned me with the Xanax. Here&#39;s a drug that clearly states it&#39;s for short term use only, and I was on 2mg a day for 10 months! I didn&#39;t know any better, and have just spent the last 6 months struggling to come off of it. I still suffer from some w/d symptoms, but am getting better slowly.

On the Lexapro, I came off that with no problem after about 4 months of use, becasue I didn&#39;t think it was helping me. I prefer to tackle this without medication, so I know what is working for me and what is not. For example, I spent months doing VRT, and now find out that while I was on the meds, my brain wasn&#39;t compensating. http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/mad.gif

Let me know if you have other questions.

Take care,
Bruce

fuzzyhead
14-09-07, 09:02 PM
Hi Bruce,

Thanks for letting me know a/b the drug you were using. I don&#39;t pretend to be an expert on MAV - just know from what I&#39;ve read from lots of MAVers on the Healthboards site. Alot of MAV sufferers cannot get their vestibular symptoms ie vertigo, nausea, headaches etc under control without medications. I have a particular interest in this b/c I suffer with wicked headaches since getting LABS and wonder if these headaches are complicating my recovery. I also have visited the mvertigo.org site for info on this condition.

Anyway - hope you&#39;re feeling better and get to the bottom of things. I have more testing in Toronto in Nov to narrow down my dizzy sources....should be interesing:)

Tracy http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/biggrin.gif

subterraneanboy26
04-10-07, 04:31 PM
Bruce/Steve

I seem to suffer from similar symptons to you both, the balance problem is the thing which i find most difficulty in explaining, its not a spinning sensation, just a feeling on uneasy on my feet, like not being able to stand still in a que, any sort of head movement then makes it worse. I have had this for 9 months now, since january and my symptons have changed so much over the months that i struggle to remember what my first symtpons were.

I have the head pressure, like my head feels heavy all the time, tingling, numbness down left side of face, pressure behind eyes, back of neck is achy all the time, jaw/cheekbone area feels achy all the time, moments where left nasal passage blocks completely and feels like i cant breathe (nose feels blocked all the time though), pressure between the ears (feels like something is stuck in there), my balance is worse when in public situations, like shopping, standing in bars, ques, my balance is at its worst at night, although i suppose this is because your body is tired from dealing with the symptons during the day.

My eyes have become affected through all this, find it hard to focus, especially when on computer at work, my lightheadedness is at its worst when on the computer.

I want to explore the TMJ route and am seeing a dentist next week. Like you both, have had MRI scan of head and sinuses, only thing it revealed was blockage left side of nose (but this was dismissed out of hand as the cause). Seen 3 ENTS, they were useless. Docs keep saying its all anxiety which is annoying the hell out of me, the only reason i am anxious is because i have to deal with this everyday and have done for last nine months, i wake up every day knowing its gonna be a struggle getting throught the day at work, i used to love my job but dread it now!

In the first couple of months they diagnosed LABS, but i dont believe this is it, i cant believe it would go on for this long!

Like yourselves i am determined to find out whats causing this, theres nothing worse than not knowing whats wrong with you. I dont want to put my life on hold any longer, as its now turning into a nightmare!

Can anyone else relate to my symptons/feelings?

Keep in touch!

zakk80
05-10-07, 08:54 AM
Wow, I thought I was the only one!

I&#39;ve had head pressure on and off right on the bridge of my nose for 6 months. It&#39;s been one of my more prominant symptoms. I&#39;ve had the MRI of the head and all that but doctors don&#39;t seem to have any answers for me except VN and Post Viral Syndrome.

vaio
22-01-08, 03:14 PM
I can relate to this thread very much (dizziness-not spinning, head pressure, neck pain, unable to focus).
My problems started some years ago, there were periods when things were better but they never totally subsided.
I&#39;ve spent a lot of money with docs and got no help, most of them said it&#39;s stress. I&#39;ve noticed stress makes it worse but I really doubt it is the main cause.
Did you guys find any solution yet? How do you cope every day?

dizzydiver
22-01-08, 10:08 PM
<div class='quotetop'>QUOTE (BruceC @ Aug 23 2007, 08:58 PM) <{POST_SNAPBACK}> (http://index.php?act=findpost&pid=26934)</div><div class='quotetop'></div><div class='quotemain'>So here we are. The one caution I would give everyone is to avoid anti-anxiety meds or anti-depressants if at all possible. My first ENT put me on Valium to calm my vestibular system. This led to 9 months of benzo addiction, where I was taking as much as 2 mg of Xanax a day to keep from losing my mind. I am now 4 months benzo-free, but still struggling with bouts of anxiety followed by depression.[/b]</div>

Can you please explain why you advise avoiding anti-depressants? I agree with avoiding addictive anti anxiety medication such as benzo based drugs, and recommend smacking the so called Dr in the face who prescribes such medication. But SSRIS control pain, control anxiety are non addictive and
have less side affects.

Here is some advice, I really want to help so Im giving it straight to you since we share the same symptoms so I know where you are coming from, see pyschiatrist not a ENT, then see a Neuro-tologist. I am in the same bracket of not getting any bennefit from Vesitbular physio therapy.

Sixtoes
01-03-08, 05:04 PM
Although I&#39;m a bit late to this thread, finally I&#39;ve found other people with almost the same symptoms as me.

I get a lot of popping and fullness in my ears as well, which often ties in with the dizziness but not always.

I&#39;m currently trying stemetil but it doesn&#39;t seem to be having any effect, nor did Serc 8. Nasonex seemed to make things worse if anything although I started to produce vast amounts of mucus.

I&#39;ve also had that sensation where somthing &#39;goes&#39; in my head and I feel great, but it doesn&#39;t seem to last . I&#39;ve had two of these events in the last 6 months, the second one after a heavy cold where I had no symptoms afterwards for about a week.

I&#39;m really interested in the report of the water and pus like substance coming out of the nose. It seems to me that there is &#39;something&#39; going on in the sinuses which is causing the eustachian tube to get blocked, and that these clearances are that &#39;something&#39; moving.

Has anyone else tried Jala neti? (the yogic sinus flushing thing) On the basis of all of this I&#39;ve just ordered a kit and i&#39;m going to try it out to see if it frees up this blockage (if indeed the blockage exists). I don&#39;t think it can make anything worse at least!

SadPanda
01-03-08, 10:36 PM
I have always found my dizzy symptoms hard to discribe and I have now just read 4 or more people describe the way I sway exactly.

I also have the head pressure all the time however I guess I&#39;m kind of lucky that a couple of codines and a couple of paracetamol take the pain away, however with me the pressure does become an accute pain that settles behind my right eye.

I go back to see my ENT in April and I&#39;m going to ask him about this, I told the audiologist that did my balance tests this and she said that that would explain why the tests showed I clearly have a balance problem but they couldn&#39;t tell what it was.

As for the anxiety, I have some occaisions where I have full scale panic attacks, Normally when I&#39;m lying in bed, they stop me from sleeping and this is the only time I get spinny dizzy.

Do any of you guys twitch? I mean the type of twitch where your whole body jumps, like you were having a convulsion but I only go once, as in I jump, then I calm down sort myself out, I may go again a couple of times in 10 mins or so but then it won&#39;t happen again for a couple of days. Sorry it&#39;s really hard to explain.

moppie
02-03-08, 09:40 AM
Hi Sixtoes

I wrote a topic about headpressure and spinal fluid,what menifested itself a s a nasal letdown of watery fluid.I had this because of a hole in the inner ear so it can be inner ear relatedIf you click on my name it is under view all members topics.

Might be of some help to you

All the best

Moppie

vpfreedom1
18-07-08, 09:11 PM
I too have *fairly* constant head pressure. There is relief here and there, but the overriding sensation is dizziness, "thickness" or heaviness in the head, a sort of "I'm an eye inside a camera lens feeling...". It is difficult to explain, but after 3 years of feeling it, it has begun to take a toll.

I now experience anxiety and panic related attacks, am anxious about doing things that previously didn't affect me. I just feel as though I am succumbing to it and subordinating myself to the spinning, and other things are jumping in on me.

I have normally managed to deal with the spins, and I attribute them to
1. a half dozen concussions
2. a minimum of 3 cervical spinal compression-type injuries
3. chronic neck pain from a weight training soft tissue injury affecting my sternocleidomastoids, scalenes, and subscapularis--this in conjunction with the other accidents.

I just look forward to the day where I know what it is that causes the dizziness, and look even more forward to the day when it is either treated or manageable.

bvlstudier
18-07-08, 09:35 PM
I dont know if this is the same type of head pressure you guys get...I kinda hope someone gets it because I dont know what it is.

It only lasts around 10-15 seconds and sometimes it can be much faster. It feels like someone has their hands (and they are super big hands) completely all around my head and they are squeezing it super super tight from every angle. My ears start to ring too. Right after that I get my dizzy spells. The spells are not super bad but they are definately there.

Anyone else get something like that?
Katie

rayend
20-07-08, 02:51 PM
<div class='quotetop'>(subterraneanboy26;15781)</div><div class='quotemain'>Bruce/Steve

I seem to suffer from similar symptons to you both, the balance problem is the thing which i find most difficulty in explaining, its not a spinning sensation, just a feeling on uneasy on my feet, like not being able to stand still in a que, any sort of head movement then makes it worse. I have had this for 9 months now, since january and my symptons have changed so much over the months that i struggle to remember what my first symtpons were.

I have the head pressure, like my head feels heavy all the time, tingling, numbness down left side of face, pressure behind eyes, back of neck is achy all the time, jaw/cheekbone area feels achy all the time, moments where left nasal passage blocks completely and feels like i cant breathe (nose feels blocked all the time though), pressure between the ears (feels like something is stuck in there), my balance is worse when in public situations, like shopping, standing in bars, ques, my balance is at its worst at night, although i suppose this is because your body is tired from dealing with the symptons during the day.

My eyes have become affected through all this, find it hard to focus, especially when on computer at work, my lightheadedness is at its worst when on the computer.

I want to explore the TMJ route and am seeing a dentist next week. Like you both, have had MRI scan of head and sinuses, only thing it revealed was blockage left side of nose (but this was dismissed out of hand as the cause). Seen 3 ENTS, they were useless. Docs keep saying its all anxiety which is annoying the hell out of me, the only reason i am anxious is because i have to deal with this everyday and have done for last nine months, i wake up every day knowing its gonna be a struggle getting throught the day at work, i used to love my job but dread it now!

In the first couple of months they diagnosed LABS, but i dont believe this is it, i cant believe it would go on for this long!

Like yourselves i am determined to find out whats causing this, theres nothing worse than not knowing whats wrong with you. I dont want to put my life on hold any longer, as its now turning into a nightmare!

Can anyone else relate to my symptons/feelings?

Keep in touch!</div>
I've got very similar symptoms to yours, but no neck pain. It lasts for 9 months so far. Diagnosed LABS (well, my GP said so), but ENG results didn't reveal any damage to my vestibular system (they said either it was too small they couldn't detect it, or I recovered). I don't have vertigo per se, I just feel like I am on the boat ,spaced out and weak. I very often feel nauseous, which is really bad.
MRI came clear. They found a little hearing loss in my left ear (high frequencies) and I often have tinnitus in this ear (ENT saw me)

I don't take any medicine, except nasal spray (for sinuses) which I don't know if it helps or not. I do vapor inhalations which seem to help for a couple of hours. My head feels like it would be filled with fluid, when I move it, the "fluid" shifts from side to side. Sometimes I have very weird scalp "itches" and sometimes feel big pressure (like someone would press a finger against my skull) in one very specific place on the left of my head, above the ear, the place where we have no bone (I hope you know what I mean). All this crap is much worse in the mornings.

Not getting any "normal" headaches.

I have few days when it's mild and almost non existent, but on some days it can get ugly..It often gets worse or much worse in bigger shops. I cannot not go to work tho, no matter what I have to be there.

I can get pretty anxious from time to time, had a little bit of panic attacks etc.. but I try to keep it under control and so far I succeed. It's very hard tho and drains energy, which I need for other things. I try to not to get depressed and most of the time I am not, feel very tired tho.


Trouble is that I am changing job and going to commute for a couple of hours a day, so I won't have time to see doctors anymore. I don't feel like seeing doctors as well, because they don't help me. I don't know what's going on with me. It gets in my way big time, especially with what I do professionaly (I do 3D graphics, have to use foreign language at work (English isn't my first) and in general be very concentrated) and my girlfriend is very tired of it as well (she is very supportive tho). I learned to cope with it more or less, but it's not something I can live with for a long time. I am bit worry that I can break if it doesn't go away soon, but at the same time I lost all hope - either my body heals itself, or not.. doctors do nothing.

Funny thing is that I got mildly drunk a couple of days ago, for the first time since many years (last day at work, normally I don't drink), had total alcohol vertigo at night and totally didn't care about it - it did nothing to me, didn't even feel nauseous a bit. Very little hangover next day and no big sensations with my head.. everything was rather normal.
What I get during the day from my head on worse/bad day.. that weakness, nausea and rocking sensations is much, much worse than having drunk vertigo.
I do not drink coffee, eat very healthy (no pre-made meals, no fast food, lots of seas food and vegetables/fruits), although I do smoke cigarettes (around 10-15 a day, light ones) and I am in overall good shape (no overweight and I am fairly muscular). I sleep normally, 99% of the time.

I have found sea bands help with nausea a bit. I'll never, ever take any anti-depressant, tranquilizers or sedative drugs (they won't work with my attitude as well) because I consider them poison and believe more in cognitive therapies - our mind is strong enough to get out of most of so called depression by itself. Anyway, I do not feel depressed when I have good days.

If anyone has any suggestions what it might be, would be greatly appreciated. At least I could go to my doctor and suggest something, because right now they just seem to be completely clueless and stick to LABS "diagnosis"

Agnes
20-07-08, 04:41 PM
Hi Rayend, i would suggest that you try to get an appointment to see a balance specialist like a neuro - otologist, write down all your symptoms to take with you. alot of what you are describing is common among lots of dizzy disorders so you need tests done. I take it the ent did eng tests on you like the caloric test with the hot and cold water or air? . it sounds like you would also benefit from some tailored vrt exercises which are to help the brain compensate but first you need a proper diagnosis so that the vrt physio has something to work with. hope this helps a bit.

rayend
21-07-08, 11:00 AM
<div class='quotetop'>(Agnes;40517)</div><div class='quotemain'>Hi Rayend, i would suggest that you try to get an appointment to see a balance specialist like a neuro - otologist, write down all your symptoms to take with you. alot of what you are describing is common among lots of dizzy disorders so you need tests done. I take it the ent did eng tests on you like the caloric test with the hot and cold water or air? . it sounds like you would also benefit from some tailored vrt exercises which are to help the brain compensate but first you need a proper diagnosis so that the vrt physio has something to work with. hope this helps a bit.</div>

Thanks for reply. yes, I had caloric test with water (and a bunch of other tests, it took a couple of hours at the hospital) etc.. (came out clear - balance problem too small to detect or recovered - that's what doctor said) - it didn't bother me at all (made me giggle a bit, but I've always enjoyed roller coasters and stuff like that), I've never had a vertigo like during the test, except when drunk. The doctor who was running the test said that it was very hard to read my eye movement, whatever it means.

ENT I saw was neuro-otologist, and a very good one for that matter. I've told him all you have read here.
I am ill since November last year and I didn't lie in bed or anything, I live "normal" life, I do not avoid any activities and go to work normally (it is freaking hard sometimes), so I'd believe my brain would compensate by now? I took stemetil once (one tablet) and serc-8 for a a week or so (didn't help at all), so there is no way any drugs would slow down my recovery.

That's why I say, I don't really see any reason to see a doctor now, without giving him some clues.. as stupid as it sounds. I can go and see my GP but all I'll get is a word that my illness will go away at some point... I know it might sound a bit stupid, but seeing a doctor seems to be a waste of time, any progress I've made (and I've made some, from really bad to bad, hehe) was natural, doctors didn't help me at all. I don't blame them, but this is just the way it is - they don't seem to know/unable to diagnose what is going on with me.

I just had this thought, does anyone know any vestibular therapists I can see privately? I live near Oxford, UK.

Agnes
21-07-08, 07:21 PM
Hi Rayend, sounds as if some tailored vrt would help you get over the final few hurdles. I know Queens square in London have a vestibular physio dept but dont know how easy that would be for you to get to. might be worth giving them a call. Thats where professor Linda Luxon practises too, she is one of the leading doctors on balance and the inner ear. hope this helps a bit

meeshyell
21-07-08, 09:48 PM
after 6 perfect days ! with no head pressure 2nd time in 8months and no symptoms whatsoever..........
the headpressure came back last night along with lots of tingling on the bridge of my nose, sore neck and headache and wooziness !

I believe if I could find out what the headpressure is from I would have my answer !
back to cranial sacral therapist in 2 days

rayend
21-07-08, 10:49 PM
<div class='quotetop'>(Agnes;40598)</div><div class='quotemain'>Hi Rayend, sounds as if some tailored vrt would help you get over the final few hurdles. I know Queens square in London have a vestibular physio dept but dont know how easy that would be for you to get to. might be worth giving them a call. Thats where professor Linda Luxon practises too, she is one of the leading doctors on balance and the inner ear. hope this helps a bit</div>

Thank you Agnes, I'll try to call them and maybe go there during lunch and ask in person.

If it doesn't help, I am going to book a few days in Six Flags near Los Angeles and puke my way out of it :nuts: (great fun, of course I didn't have balance problems back then).
Seriously speaking, I hope I have enough energy to fight back this illness till the end of it.
You guys are great help, thanks!

rayend
29-08-08, 05:26 PM
Well, I've changed my job, commuting almost 4 hours back and forth every day (need to get to London from my little town).

I can cope with it, but on some days barely, once or twice it went really awful on the train (good thing is I don't puke). Still having the same symptoms most of the time, although, I had really good week with almost no symptoms once, during last month. it was re - assurring, until next day.. to be honest I'd rather prefer to feel crap all the time.

I have very demanding job, but so far so good, I think the responsibility for my kid keeps me going somehow..

I've got a week off now (normal vacation), feel like crap unfortunately.
The worst thing is falling back from feeling good to crap, just as now. Mentally it's very hard and it completely demoralized me.

I didn't really try any VRT since I asked, just because I don't have too much time for it (and possibly, I don't believe it will help) and I think London Paddington station and tube for 2-3 hours a day is enough of exercise for now. Tube is crazy, platforms are like instant roller coaster (on some days, I need to follow the walls style_emoticons/<#EMO_DIR#>/smile.gif, must be funny view for other people, big, normal looking guy following a wall, I'd not be surprised if police would search me for drugs or something style_emoticons/<#EMO_DIR#>/smile.gif ).

It will be a year soon and I actually don't believe anymore that it will go away, ever. If it could, it would go already , so I kind of accepted that it is eating me slowly and will finish me at some point.. well, I'll just continue rolling until I fall, hopefully later than sooner style_emoticons/<#EMO_DIR#>/smile.gif.

TomBoismier
30-08-08, 06:02 PM
<div class='quotetop'>(rayend;44086)</div><div class='quotemain'>I didn't really try any VRT since I asked, just because I don't have too much time for it (and possibly, I don't believe it will help) and I think London Paddington station and tube for 2-3 hours a day is enough of exercise for now.</div>

I disagree. This is sensory overload and will not help the compensation process.

dizzysal
30-08-08, 06:14 PM
VRT is wonderful and really helps restore the balance and clears the foggy head, you really should find time to give it a go.

Sally