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j0hnny1
27-09-07, 10:57 AM
g&#39;day peeps http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/smile.gif

have only just found this site and i think it&#39;s a bloody brilliant idea!

i&#39;m writing this in hope others might be able to help me with their experiences regarding my ongoing "dizzy" issues.

it all started in August 2006 (when i was 26yrs old) when i was standing in a shop and i felt the room spin (not twirling but shift slightly from one side to the next, like if you were changing a camera angle during a PC game). This made me feel nausea and generally unwell (no vomiting though). I also noticed that same day that I had nerve pain in my left arm and leg. My left hand side of the neck was also stiff and sore. I was doing alot of weights then and though this was the reason. The intense dizziness continued for about 2 weeks (and I had nystagmus)although the nerve sensation only lasted a week. I saw my GP and had the following tested:

- CAT SCAN of neck (result was normal)
- Thyroid Blood Test (result was normal)
- Full Blood Count (result was normal)

The GP then diagnosed me as having labs. 12 weeks later and no improvement, i&#39;m off to see a neurologist. He has the following tests done:

- MRI brain (result was normal)

He concludes this is labs as well and to tough it out. 2 more months past, no improvement I&#39;m back at the GP who orders:

- Full Blood Count (result was normal)
- Endrocrine Blood Count (result was normal except cortisol levels 893nmol/l (higher then the accepted range and test level 11nmol/l which is 1nmol/l from the minimum)

GP concludes probably not labs as should of been over it by now. I was then referred to an ENT. ENT orders following tests

- Caloric Test (result was normal)
- Hearing Test (result was normal)
- Full Blood Count (result was normal)
- ENG Test (result was normal)
- MRI brain/neck (result was normal)

ENT then referred me to a Neuro-Opthalmologist. He checked my eyes visually, which were normal and ordered the following test:

- EEG (result was normal)

Referred back to ENT who refers me to a Cardiologist. There I have the following tests done:

- Holter Monitor Test (result was normal)
- Ultrasound (result was normal)
- Tilt Table Test (result was normal)

So then I&#39;m referred back to ENT who now is referring me to an Endocrinologist (see him next month) to check out the cortisol levels I highlighted to him from my hormone test way back).

Currently my symptoms are:

- Swaying sensation when not laying down (like when you&#39;ve come off a boat)
- Ear pressure/ache in left ear but sometimes pressure in both ears like it&#39;s surging out of them
- Fatigue, tire easily
- Malaise
- Sore left side of neck, limited rotation
- Dark circles under eyes
- Sometimes a swimming feeling in head like thoughts all over the shop and can&#39;t focus. At these times I also feel very weak and feel like my nervous system is exhausted/jittery.
- Occassional headaches or more like head pressure in the back part of the head

Sorry for the long read but I feel it&#39;s probably best to be thorough especially since it&#39;s been ongoing for 13 months. I&#39;m really hoping someone can shed any light on this as my quality of life has really been affected and the prospect of having this go undiagnosed and to continue is very, very depressing.

Thanks for your patience.

j0hnny

Pamela
27-09-07, 11:35 AM
Hi j0hnny,

I&#39;m glad you&#39;re finding the site helpful. It would be a good idea to have a referral to a balance specialist or neuro-otologist for further testing because ENTs don&#39;t always know that much about balance disorders. Unfortunately it&#39;s not always easy to find these specialists. If you can get a proper diagnosis then you might be given vestibular rehabilitation exercises to do.
In the meantime I&#39;m sure you&#39;ll find lots of information and support on the site. Have a look in the section called &#39;The Conditions&#39; and you&#39;ll probably see symptoms just like yours listed which will at least let you know that you&#39;re not alone in this.

Gillie Beanie
27-09-07, 06:59 PM
J0hnny

Welcome to the Dizzy Family!

It sounds like you have classic symptoms of a balance disorder, but you do really need to track down a balance specialist. I saw an audiovestibular consultant.

I&#39;m quite surprised you received normal results for the ENG and caloric tests, but as Pammy&#39;s pointed out, it could just be a case that the person reviewing the results wasn&#39;t a balance specialist and may have missed something (I don&#39;t mean to be disrespectful to medical professionals, just posing a theory).

Have a good look around the site, and feel free to post your experiences or questions, even on older posts, as that Member may be able to offer some insight.

Keep us updated!

chris
28-09-07, 01:40 AM
in the past i have written about the weird sympotoms i have that come from my neck.
tooooooooo weird http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/angry.gif

u say u have no roatation

seeing as u are soooooooo normal http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/rolleyes.gif if i was u i would go see a physio and see if she can do something to improve your neck.

i can usually tell the difference between the symptoms from my neck and the symptoms from my labs but if i am having a hugely crappy day and have a sore neck and /or a head ache ......i go to the physio
and it is rarely that i am not made better by the visist with him gently mobilizing my neck.
nothing hard or twisty

the weird symptoms from my neck have been with me for about 7-8 years and i thought i was nuts.
til the ENT guy told me to go get my neck fixed
and it was like magic....for those symptoms.
but they didnt include tiredness or malaise

the other thing i have tried also and might help u, is to have some local chinese massagers attack me.
boy do they have the strong arms and elbows....and i ask for it to be heavy duty ....none of this gentle stuff.
my neck/back muscles are like boards and have been for 20 years
they have been a life saver for me at times when the physio wasnt available .

give it a go
at least u can get your neck sorted if nothing else.
i see a private physio as anyone attached to hospitals here does not do the hands on stuff that i need.

bplturner
28-09-07, 02:04 AM
All of mine started when I sprained my neck. I got my neck fixed (well, in the process of being fixed) but I still have some weird dizziness/disequilibrium junk going on. The lightheadedness that I think was associated with my neck is getting better, but I still can&#39;t shake this feeling. I have also had every test in the book that include:

5 Complete Blood Counts
2 Metabolic Panels
3 CT Scans
1 MRI of Head
1 MRI of Neck
1 MRA of Head
1 Ultrasound of Neck Arteries
1 ENG
2 Chest X-Rays
1 Echo Stress Cardiogram

You know what they&#39;ve found? Not a damn thing. I get my thyroid tests back on Monday and also cholesterol and another extended metabolic panel. I kind of want them to find something, but at the same time I don&#39;t. Sigh, I&#39;m just at my end I think. I, too, am young (23) and this is seriously affecting my ability to go to college and work. I still manage to do both, though, but I&#39;m wearing down!

Pam
28-09-07, 08:52 AM
Hi j0hnny and Benjamin

My ENT thought my dizziness was because of tension in my neck. I am currently going through another bout of very mild dizziness which appears to be either due to me getting a cold, or doing something to my neck the other day when I was on the computer at work. Haven&#39;t quite figured it out yet, and I&#39;ve never had any proper testing because every time I get to see ENT I&#39;m totally fine! I&#39;m quite convinced by the neck theory though, because I&#39;ve been getting this cold for ages and I was OK till I was sitting at the computer and got a really stiff sore neck and headache because of my posture. If you can get to a physio then see if they can sort your neck out and that might really help you j0hnny. I&#39;m having reflexology to sort me out again.

Pam xx http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/smile.gif

j0hnny1
29-09-07, 01:07 AM
thanks for your input peeps, it&#39;s very much appreciated! http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/smile.gif

regarding neck, i&#39;ve been seeing a physio for the last year about it. I don&#39;t think my weight training is helping so I&#39;ve scaled that right back. My physio said it is possible the neck can cause dizziness due to pressure on some artery that runs up through the left side of the neck but after the MRI/CAT scan there showed no disc bulge or compression. But he did mention not all vascular problems are picked up in MRI&#39;s/CAT and maybe a ultrasound of the neck would be worthwhile, which I will be organising in the next coming days.


good call also about seeing a another specialist that deals specifically in balance disorders. i&#39;m trying to get into see a neuro-otologist although having an extremely hard time finding one at the hospital even though it&#39;s on their website! crazy. i found a private neuro-otologist but the wait is 2 months minimum but might have to bite the bullet and go that.

i also forgot to mention that another symptom i get when the swaying is really bad is weakness in the legs. it&#39;s like i&#39;ve got no strength in them whatsoever. they sometimes even ache slightly. i&#39;m not sure what that means though...

also benjamin, i know exactly how u feel mate. it&#39;s bloody horrible. i&#39;m only 27 myself and about to move interstate in the next month so i&#39;m also feeling very apprehensive about the future. it&#39;s like i&#39;m operating at 25% of my capabilities, just enough to get by. the worst part is that i feel it takes away my independance so i feel half the person i used to. but i&#39;m EXTREMELY determined to have this fixed once and for all and won&#39;t stop till it is. reading other people&#39;s success stories though certainly breathes new hope into me for when i&#39;m down so might be worthwhile for you to check out also.

chris
29-09-07, 05:29 AM
i am too stupid in the head today to recall what it was specifically that i was told is the issue with the neck

i can be the artery but that is not what my issue is.
and i believe, but dont quote me.......that the artery thing is likely to be more dramatic than your onset.
it was what was ??? in me and i was actually admitted to a stroke ward http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/wacko.gif
it is to do with receptors that are in the neck that is the issue that i am thinking of.
receptors there are involved in balance
and so my sons ENT specialist tellls us...........in tinnitus

i dont know about u but i can scew up my neck in a very efficient way doing some very ordinary exercises and yoga
i have stopped some of them because no matter what i do i *involve* my neck where it shouldnt be.

good luck

bplturner
29-09-07, 03:19 PM
Its called proprioceptors, apparently its the nerves that send the muscle and joint locations back to the cerebellum. Muscle tension apparently really messes these up.

Pam
29-09-07, 07:04 PM
Thanks for that Benjamin! That might explain what is happening to me. Very helpful - thanks again!

Pam xx http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/smile.gif

chris
30-09-07, 11:01 AM
<div class='quotetop'>QUOTE (Pam @ Sep 30 2007, 04:04 AM) <{POST_SNAPBACK}> (http://index.php?act=findpost&pid=29715)</div><div class='quotetop'></div><div class='quotemain'>Thanks for that Benjamin! That might explain what is happening to me. Very helpful - thanks again!

Pam xx http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/smile.gif[/b]</div>

yeah

just go get those *prios* knocked into shape http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/wink.gif http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/laugh.gif http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/cool.gif

for me the difference between before and after treatment .....if it is my neck that is the issue as opposed to the labs...........is just remarkable.
it might take 5 mins or 20 mins to kick in but it kicks in for sure....i can stand there and feel it happening and it is like something being taken *off* my brain http://www.dizzytimes.com/style_emoticons/<#EMO_DIR#>/ohmy.gif

and sometimes when the physio is doing his mobilizations it makes me feel sick.
which symptom i only had in the first week of labs.
but obviously he is working on an area that affects that part of the messages to teh brain