Yes, I think the nuero-oto or oto-neuro is the best place to start. If not one near you then you could try a neurologist as a 2nd choice.
Keep us posted

Pam 3

I have been to many GP’s, a neurologist, an ENT, audiologist, homeopathic doctor, done an MRI, encephlograph, and have had many blood tests done, to no avail.


So maybe the nuero-otologist is the way to go. When I get the chance, I'll make the appointment.

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It doesn't have to be the way it is, you say it is
Just because for the past 20 years, every day it is

Hi Jordan

That sounds good,your GP should be only to glad to give you a referral after you having this for so long.If not then indeed you can insist,is your health ,so stand on your head if need be!

Not a problem Mee.The hit on the head could be significant ,so don't forget to mention that.

Minsterman,PLF can be caused by headtrauma,recent or even years in the past and we are talking just a hit on the head,does not have to be major,but also from anything that puts pressure on the ear,so that can be weight lifting,scubadiving, flightdecsent,childbirth ,whiplash
but even something as simple as a sneeze or anything that might change the pressure in the ear can cause this,some people have no idea what caused their PLF ,the verdict is out on that one if it can occur spontaniously or that they might have had something in the past or recent and just have forgotten about it .If you can relate it to something and you get dizzy straight after then it just ads to the suspicion,from longer ago it gets harder but might just be helpfull to get to diagnoses if suspected .
I have been following your progress,as recognise everything that you have been discribing and have been keeping my fingers crossed for you that it would heal up for you but certainly something that you might want to start looking into,you said in the dizzy diary that you started getting the headaches that could be another sign.You're still in the timeframe though ,so here is hoping!

All the best

Moppie

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<div align="center">We strongly advise anyone wishing to take up vrt or change/stop medication should consult their doctor first.</div>

moppie, headaches are very few and mild, though your right I do remember mentioning them.

The most scary symptom is this damned interal and muscular numbness, it very rarely goes away, hell I'm lucky if its once a week for a few minutes! Is that a symptom?

I also hope I recover soon, its had such a effect to my life.

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I had many of the symptms you describe, I have had no formal diagnoses, docters and ent here are very slow in doing anything, i have gone from not being able to drive, think straight, to being able to drive, read, do everyday things, I have had cranial manipulation done, take ginko biloba, super gla 300mg, no salt in my food, nor caffiene ,chocolate ,cheese.Al this together has made my life liveable, I also do the vrt exercises. I still feel very fatigued at times, nausea, and out of sorts, but no where near what I was experiancing. I havnt had a bad attack of the dizzyness for 6 weeks. I was prepared to try anyhitng to get better control of my life. Hope this helps any one out there. Its so debilitating and I was sick of trying to explian to others what its like, they think ya have gone mad.Now I at least can get on with it and get out there again,, even flew a week ago,, FANTASTIC

Yes Jordan - go for it! You need to see a neuro-otologist, and the sooner the better.
Good luck!

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xx


We strongly advise anyone wishing to take up vrt or change/stop medication should consult their doctor first.

Okay, I made a post in the question area.
I need a little help. It seems the doctors in my area know nothing about a Neuro-otologist.
Can someone please find me one in my area with a link and a name too please. I can phone her by 4 and she will give me a referral.

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It doesn't have to be the way it is, you say it is
Just because for the past 20 years, every day it is

All of our symptoms are so similar, I suppose we all think you have our disease. As I read over your symptoms, it certainly sounds an awful lot like Meniere's Disease. Also, I think I read somewhere that you received a bump on the head? I think that is how mine started. I ran into the side of a truck and got a nasty bump on the left side of my head. I didn't have any symptoms until almost a year later. Has anyone ever mentioned this (Meniere's) to you before?

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Shellpointer

I would like to see if I have Lyme's disease. Where can I go, who can I see, and what do I say?

I read an article here http://www.canada.com/edmontonjourna...54af289&k=2658

"We're very concerned about any disease that can affect human health," Tuckwell said. "We have never had a local case of Lyme disease in Alberta."
Between 1992 and 2006, 19 cases were reported in Alberta, but all the patients had travelled to eastern Europe or the east coasts of Canada and the United States, where ticks carrying the bacteria are common.
Despite this, Janet suspects Alberta has a growing problem and believes many local cases go undiagnosed, partly because local labs are giving out too many false negatives.

Lyme disease found in Edmonton-area ticks
http://www.cbc.ca/canada/edmonton/st...e.html?ref=rss

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It doesn't have to be the way it is, you say it is
Just because for the past 20 years, every day it is

Well I have an appointment to see an ENT again. It's May 20. I never expected it to be so soon.
This time I'll bring my papers and we will see what happens this time.

Any advice as to what I should tell him this time around?

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It doesn't have to be the way it is, you say it is
Just because for the past 20 years, every day it is